Hi Everyone! I know I have taken much too long again to post. Jordan is doing better every day. The weeks are very busy for us with therapy 3 times a week and doctors appointments. Since we last posted we learned that Jordan had visual midline shift syndrome which means she believe her midline was off to the right instead of straight ahead like we all see it. To correct this she ordered special eye glasses made from prizims. We are not sure how long she will need to wear them. She is also seeing a Neurologist and is going to have some testing done to see wear the weakest areas of her brain are. She misses school and her friends and I still dont think she really understands why she cannot go back to school.
We just got back home today from visiting "KACHINA". It was a long ride down and Ida went with us. We took some back roads that were pretty bumpy and you know how easily Jordan gets car sick. She didn't actually get sick but she didn't feel good. It was cold and rainy so we didn't get to be in the barn for that long but it was still worth it to see how she interacts with the horses.
Jordan has a tutor from the high school now. Her name is Becky. She is wicked nice and Jordan loves her.
Jordan also got to go to a radio station...The Frank 107.5 fm and pre-tape a recording for the radio-a-thon that was held for the Barbara Bush unit that aired this week on Thurs., Friday and today.
Mrs. Clark has been to visit and had arranged for some teachers to come and visit with Jordan but it gets cancelled because of snow. We have rescheduled again for this week and hopefully we can make it.
Some friends have been over to visit. This is extremely important for Jordan.....so if you have not been over please come see her soon!
She is using a walker a little bit more and they are thinking of maybe doing some more botox in her left arm to see if they can straighten it out more.
I wish she could use her left arm more....I think it would help so she could do more things independently. She gets really frustrated and tires out so easily when she cannot do things. It wears out the both of us. I know we sometimes want to "give up" but we are both determined to get her to walk again. It just is hard because it is a very long road..... We have to take it day by day and not look ahead. TIME.... it is just going to take a lot of time to make it all happen.
I think we are all getting a little cabin feaver these days. It would be so nice to be able to take her outside and do things but this weather keeps us at home most of the time.
Jordan is have fun with AIM with her friends. She is doing well considering she can only type with one finger and how much her hand shakes. She seems to be keeping up with the typing. This has been her lifeline to keeping in touch with everyone.
We want to THANK YOU ALL AGAIN for all of your support.
We could not have done this without you.
We love you...... Jordan, Brenda & Jimmy
Saturday, March 8, 2008
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